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Topic: Eugenics
September 19, 2014 | Posted By Ricki Lewis, PhD

In recent weeks, there’s been talk of three types of genetic testing transitioning from targeted populations to the general public: carrier screens for recessive diseases, tests for BRCA mutations, and non-invasive prenatal testing (NIPT) to spot extra chromosomes in fetuses from DNA in the maternal bloodstream.

Are these efforts the leading edge of a new eugenics movement? It might appear that way, but I think not.

When I began providing genetic counseling 30 years ago at CareNet, a large ob/gyn practice in Schenectady, NY, few patients were candidates for testing: pregnant women of “advanced maternal age” (35+), someone with a family history of a single-gene disorder or whose ethnic background was associated with higher prevalence of a specific inherited disease. Their risks justified the cost and potential dangers of the tests.

The Alden March Bioethics Institute offers a Master of Science in Bioethics, a Doctorate of Professional Studies in Bioethics, and Graduate Certificates in Clinical Ethics and Clinical Ethics Consultation. For more information on AMBI's online graduate programs, please visit our website.

October 21, 2013 | Posted By Paul Burcher, MD, PhD

The lay press has reported on two stories this week that both relate to “designing babies,” although only one of these reports is about producing “designer babies.”   The two new technologies, neither yet utilized in a human population, raise different ethical questions, but I, for one, am more troubled by the prospect of a “designer baby” than I am by the possibility of designing, or creating an embryo, free of its mother’s mitochondrial disease.

National Public Radio (NPR) reported on the advances in treating mitochondrial disease with its story that embryologists are now capable of creating an embryo with maternal DNA but with another woman’s mitochondria, thus allowing women with serious mitochondrial diseases to have healthy offspring.  The ethical issues are twofold.  This would be the first time we would change the genetics of an embryo, and this change could be passed on to its offspring as well (but only to female offspring because mitochondria are passed along the maternal line by way of the mitochondria in the ovum).  Some ethicists have argued that manipulating the genetics of the human genome in a transmissible way is a “bright line” that should not be crossed because if the procedure created any new genetic mistakes, these too would be heritable.

The Alden March Bioethics Institute offers a Master of Science in Bioethics, a Doctorate of Professional Studies in Bioethics, and Graduate Certificates in Clinical Ethics and Clinical Ethics Consultation. For more information on AMBI's online graduate programs, please visit our website.

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BIOETHICS TODAY is the blog of the Alden March Bioethics Institute, presenting topical and timely commentary on issues, trends, and breaking news in the broad arena of bioethics. BIOETHICS TODAY presents interviews, opinion pieces, and ongoing articles on health care policy, end-of-life decision making, emerging issues in genetics and genomics, procreative liberty and reproductive health, ethics in clinical trials, medicine and the media, distributive justice and health care delivery in developing nations, and the intersection of environmental conservation and bioethics.
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